Heart To Heart

Edition of 3/15/2006

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HeartToHeart - Volume II, Issue 3 - Organize a Home Team: Part 2

It’s important for both you, the patient -- and your caregiver-advocate -- to arrange for spiritual and psychological support before, during, and after the operation from people who will be willing to check in on you regularly about your state of mind and soul.

Heart To Heart - Volume II, Issue 3 - Organize a Home Team: Part 2

Volume II, Issue 3 - Organize a Home Team: Part 2                  March 15, 2006

This free online monthly newsletter is published on the 15th of every month by
Maggie Lichtenberg, PCC
Recent open heart surgery patient and thriver




Organize a Home Team: Part 2

Please Share Your Experiences

Free Heart Surgery Phone Support Group

Upcoming Speaking Events

More Advance Praise for the E-Book

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Heart patients and loved ones find my website both before open-heart surgery, or once they are home recovering.  Lately, I've had more sign-ups to Heart to Heart from those facing open-heart surgery.  So my selection of a topic for this month is taken from another section of Chapter 4, "Organize a Home Team," from The Open Heart Companion: Preparation and Guidance for Open-Heart Surgery Recovery.  The book's Table of Contents is on the website.

Organize a Home Team: Part 2

Arrange for Spiritual and Psychological Support

It's important for both you the patient — and your caregiver-advocate — to arrange for spiritual and psychological support before, during, and after the operation from people who will be willing to check in on you regularly about your state of mind and soul.  Examples might include a close friend or sibling; a psychotherapist, counselor, or coach; your pastor, your rabbi, or another spiritual practitioner.

Ask the designated person (or two) to phone on a regular basis, to ask questions, to see how you both are faring emotionally, physically, mentally and spiritually. If you are struggling, if you seem in a fog, if something is just plain "off", that person will catch it and pitch in to help with next steps, which might include longer conversations together, counseling with a qualified coach or a mental health professional, or prayer or healing circle sessions.

Designate a Follow-up Communicator

The day of, or the day after, surgery, everyone connected to your inner circle will want to hear something. Everyone will want to be assured you’ve made it through and are doing well. Anticipate the different levels of communication appropriate for family and friends. Compile a list of phone numbers and/or prepare email groupings, then designate one individual to be the first-line communicator. This person might be your primary caregiver, or he or she could delegate some of this task to someone else; perhaps your caregiver will want to make some phone calls directly while another family member or friend can send daily group emails. Spread the “being in touch” around. Involving those closest to you in this process will help them feel they are contributing proactively even before you’re out of the hospital.

Prepare Your Home Environment

If there’s time beforehand, walk around your home slowly and try to imagine how you can adapt that environment to make it more functional during your recovery. While climbing stairs usually isn’t discouraged after open-heart surgery, if your bedroom is on the second floor it could be more desirable during the first few weeks for you to take your rest in a downstairs room. Are there items in the kitchen or dining area that require reaching up high? You’ll want to avoid reaching arms up for anything heavy. You can rearrange some favorite foods, cans, bottles temporarily. And what’s in the freezer? If there’s time, cook some meals ahead and freeze them for later, and stock up on preferred grocery and toiletry items.

Your environment can be an affirming space for you during your recovery if it is practical and cozy. After all, you will be spending many hours and days there. A little forethought and some temporary changes can make a big difference. In which rooms will you be most comfortable? What time of year is it? What window will you want to gaze out of? Where will your meds and your med chart be? Where will you perform your first month’s chest-strengthening exercises? Where will you take your regular daily walks?

 

Please Share Your Experiences

". . . I underwent surgery in January to repair an ASD and have felt very lonely in my recovery.  I was not prepared for how difficult the recovery would be and wish I had found this book sooner, but better late than never.

"I've found that online heart forums don't really accept me since I am technically "fixed" now (even though I had 6 holes in my atrial septum), in addition to my having had the surgery robotically.  While robotically does mean a shorter and easier recovery, it doesn't mean NO recovery.  This is why I've been feeling so isolated, because my experience wasn't "serious" enough for other heart surgery patients.

"While reading the chapter excerpts from your book, I finally felt like I wasn't crazy for feeling how I did.  I know my surgery wasn't as hard as traditional open heart open chest, but it was still open heart.  Thank you for this wonderful book, and I cannot wait to read it."

                  -- Eileen Hagerman, Old Westbury, NY

If you have purchased and used the E-Book or the paperback book, The Open Heart Companion, please let me hear from you.  What sections of the book were most useful to you?  Where did you wish I would have included more information?  What helped you the most, and why?  With your permission, I would love to share your story or your review of the book.

Please email me at Maggie@openheartcoach.com observations and experiences that will be informative to others, like the commentary from Eileen, for future issues of Heart to Heart or for a future edition of The Open Heart Companion.  Please include your first and last names, city and state.  Thank you!


Free Heart Surgery Phone Support Group

I am currently leading a free monthly heart surgery support group for both caregivers and patients. It is by telephone for one hour on a teleconference line that we all call into. The next call will be Monday evening,April 10, 2006, 9:00 PM to 10:00 PM Eastern time (or, depending on your time zone, beginning 8:00 PM Central, 7:00 PM Mountain, or 6:00 PM Pacific). For a complete description and to register to receive the call-in number, go to http://openheartcoach.com/PhoneSupportGroup.html.


Women's Heart Connection March Event

Wednesday, March 22, 2006, 6:00-7:00 PM
New Heart Wellness Center
Albuquerque , NM

For those of you in the Albuquerque, New Mexico area, I will be the featured speaker for the Heart Hospital ’s March “Women’s Heart Connection” event. These events are free and open to the public.

The topic is: Move from Denial into Action

Description: Whether you are the caregiver supporting someone you love, or the patient facing a huge medical challenge, the sooner you choose to take a positive, proactive approach to the situation, the better the outcome will be. Hear Maggie Lichtenberg’s inspiring story of turning fear before open-heart surgery into several positive outcomes – by taking active, loving care of herself, by regarding herself as “too blessed to be stressed,” and by continually reaffirming that it would all work out.

Reservations
505-724-2200

Adult Congenital Heart Association 2006 National Conference
September 15-17, 2006
San Francisco, CA

I will offer a Breakout Session
"What to Do Before Your Date with Open-Heart Surgery "


Please see Calendar
on my web site for additional speaking events.

The paperback book as well as the E-Book version of The Open Heart Companion: Preparation and Guidance for Open-Heart Surgery Recovery are now available. Click here for the book's description. Click here for ordering the E-Book, the paperback book, or both together at a discounted price.

Advance praise for The Open Heart Companion

"This passionate and personal guide will help you both survive and thrive after open-heart surgery.”

              Mehmet C. Oz, MD, pioneering heart surgeon and author of
                   Healing from the Heart


“The Open Heart Companion is must reading for anyone who requires open-heart surgery. Written by a life coach who has been there herself, The Open Heart Companion will help you get the most out of this dramatic and life-changing experience.”

               Christiane Northrup, MD, author of Women's Bodies, Women's Wisdom


"The Open Heart Companion is just that -- a book that acts as a loving, wise, and comforting partner who gently guides you through the stages of preparing for and successfully completing open-heart surgery.  A life-saving gift filled with invaluable resources, real-life stories and must-know information, this book is required reading for all patients and loved ones."

       
Cheryl Richardson, author of Take Time for Your Life


"This beautifully written, comprehensive and absolutely accurate account of how to go into, come out of, and recover from open heart surgery is a must for patients and physicians alike. I plan to keep a supply on hand for my own patients, confident that they will find it, as I did, immensely instructive and helpful.

                Marianne J. Legato, MD, author of The Female Heart:
                      The Truth about Women and Heart Disease


"Maggie Lichtenberg has created a terrific resource for those undergoing open-heart surgery, both for the preparation and the recovery period.  Drawn from dozens of patient and caregiver interviews, the book is filled with specific exercises and insights to make the open-heart experience easier on the patient and loved ones."

               Amy Verstappen, President, Adult Congenital Heart Association (ACHA)


“The lessons herein are applicable to anyone with a challenging medical or surgical condition, not just those with heart disease. Because it outlines a series of plans for thoughtful and collaborative action, this book will be equally useful for patients and for those assisting in the care of a family member or friend…I am grateful to at last have a guide I can recommend not just to my patients and their families, but also to my medical and nursing colleagues as we strive to improve the care our patients receive.”

               Kathleen Blake, MD, cardiologist at The New Mexico Heart Institute
                  From her Foreword to The Open Heart Companion:
                      Preparation and Guidance for Open-Heart Surgery Recovery

I look forward to receiving your feedback –

Warmly, Heart to Heart,

     Maggie

Click for ordering information: The Open Heart Companion: Preparation and Guidance for Open-Heart Surgery Recovery 

 


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Maggie Lichtenberg, Publisher
Open Heart Publishing
4 Cosmos Court
Santa Fe, NM 87508-2285
Phone: 505.986.8807
Email: Maggie@OpenHeartCoach.com
Website:OpenHeartCoach.com